+ Her Barefoot Heart

Tag: nancy (Page 22 of 23)

5

5

stitched this one
while flying across
the country.

~~~~~~~~~

She draws, I stitch.
She is my developmentally disabled sister-in-law, Nancy,
and I am Jeanne, the woman who flat-out loves her.
Go here to start at the beginning and read your way current.

4

4

Happy Fourth of July!

~~~~~~~~~

She draws, I stitch.
She is my developmentally disabled sister-in-law, Nancy,
and I am Jeanne, the woman who flat-out loves her.
Go here to start at the beginning and read your way current.

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3

nancy has had some health issues
this past year,
some of it age-related,
some of it pharmaceuticals-related,
some of it of unidentified origin,
which is not unusual
with a woman who can’t tell you
where it hurts
or even that she just doesn’t feel good.

here she is writing her name: n-a-n-c-y.
although it looks more like n-a-n
then n-
then indecipherable squiggles.

this one moves me
because in her signature,
i see a reflection,
a mirror image, really,
of what is happening in her life:
a disintegration of
the nancy she was
into a woman
who isn’t sure of
who she is
any more.

~~~~~~~~~

She draws, I stitch.
She is my developmentally disabled sister-in-law, Nancy,
and I am Jeanne, the woman who flat-out loves her.
Go here to start at the beginning and read your way current.

2

2

~~~~~~~~~

She draws, I stitch.
She is my developmentally disabled sister-in-law, Nancy,
and I am Jeanne, the woman who flat-out loves her.
Go here to start at the beginning and read your way current.

1

1

I may wind up doing this one over. I’m stitching through a foundation paper. I scanned each drawing then printed each out onto a sheet of this paper that was then pinned to the fabric panel. I stitch right through the paper then tear the paper away when i’m finished. I didn’t pull the thread tight enough on this one, was treating it too gingerly I guess. but still, I’ve started.

~~~~~~~~~

She draws, I stitch.
She is my developmentally disabled sister-in-law, Nancy,
and I am Jeanne, the woman who flat-out loves her.
Go here to start at the beginning and read your way current.

in the beginning

you get an idea.
you’re excited,
and before you can talk yourself out of it,
you make a shopping list
and gather materials
you’ll need.
everything is nice and orderly.
you are ready to start.

11

somewhere in the middle
things go wonky.
you get confused.
nothing looks the way you’d imagined.
you are lost.

2

6

you persevere,
trusting, hoping, thinking,
and maybe even praying a little bit
in your own way of praying.
maybe the entire process
is praying, now that you think about it.

12

eventually
order is restored.
you are excited again,
eager to move forward.
you may not know how the finished
project will look,
but you know what you need to do next,
and that’s enough
for now.

~~~~~~~~~

And so I begin this a special project that begs my attention. Though it will be documented here on Gone With The Thread, a blog created specially for irrepressible pursuits of my heart, you can read a little bit more about the inception of the idea here.

in her own language

Nancy1

Nancy2

Nancy3

We visited Nancy last week, my friend Angela and I. After she finished her brownie sundae with strawberry milkshake, I put paper in front of her and a pen in her hand, and our Nancy drew like a woman possessed. She doesn’t have the fine motor skills to turn a single page at a time, and I couldn’t turn the pages fast enough. She drew then stopped, waiting on me to find her a fresh page. She filled the remaining pages in my pocketbook notebook then Angela’s notebook then a few bits of paper I happened to have tucked to the side. That night I bought her a 6-pack of composition books and a side of pens, and the next day when we took her to lunch, I opened them in front of her. Though she didn’t draw with quite the same intensity as the day before, she was nevertheless focused, and filled the better part of three of those six books.

Yesterday and the day before, I scanned those images, and purchased several yards of white fabric – some broadcloth and some white textured fabric purchased at a thrift shop. (Stay tuned for details on my choice of fabrics.) Today I cut the fabric into pieces, and tomorrow I’ll print each image onto a sheet of tear-away paper, then I’ll set about stitching each of Nancy’s 163 drawings – one image to one piece of cloth – using purple thread because purple is her favorite color and Angela’s purple pen is the one she obviously preferred. I imagine doing one sketch/stitch a day, but you know how that goes . . .

She’s my Sister-in-Law and I Love Her Like the “in-law” Part was Silent

Nancy2

This is Nancy, and today is her birthday. Now the only test Nancy will ever need to pass is an eye exam, but don’t you waste a minute thinking there’s not some cognitive activity going on there. It just looks a little different from what we’ve been taught smart looks like, that’s all.

There was the time we visited her on Memorial Day weekend, for example. She prattled on and on (she has a tendency to repeat things) about how nobody had to go to work on Monday. “Nobody has to go to work on Monday,” she said over and over and over again. For the first thousand or so times, I made conversation by telling her that I had to go to work on Monday. We got to the restaurant and talked about other things over lunch, then as we were leaving the restaurant – before we even got out of the parking lot – Nancy said, “Nobody but Jeanne has to go to work on Monday.” The rest of us had already forgotten that it was even a holiday weekend.

The lenses on her glasses are perpetually covered with her fingerprints because when her glasses slide down her nose – a frequent occurrence – she places three fingers on each lens and shoves the glasses back into place. But thickly-coated or no, when it comes to jewelry, Nancy has 20/20 vision. You see, our Nancy loves jewelry as much as the next girl, so when we visited her a couple of months ago and found that we couldn’t take her shopping to pick out her own, I slipped a bracelet off my wrist and put it on hers. It was a slim cuff bracelet made of pewter, much different from the elastic-strung beaded bracelets I usually get for her because they slide on over her wrist, making it easy for her to adorn herself. Well, Nancy took one look at that bracelet and smiled . . . until she turned her wrist over to look at it from the other side. Seeing the opening in the back, Nancy promptly removed the bracelet from her wrist and tossed it on the floor saying, “It’s broke.”

She can’t read a book, our Nancy, but she can put a 500-piece puzzle together faster than you or I can dump the pieces out of the box.

Nancy has no interest in or need for time management apps, but she keeps a record of her days in a spiral-bound composition book. Using one page for every day, she notes what’s most important to her: what she had for breakfast, who had a birthday that day, the names of her family members, the word “love,” and her signature. Every single day contains “love.” Think about that for a minute: Love. In every single day.

When it comes to dance partner selection on Friday nights, it doesn’t matter to Nancy what kind of car the man drives or how much money he has in the bank, or even what color his eyes are. What matters to Nancy enough to dance with a man is that he doesn’t hit and he doesn’t bite. (I know I told you that before, but I think it bears repeating for a lot of women, don’t you?)

Oh sure, our Nancy will never graduate from high school and she’ll never hold a college degree, but she knows things that can’t be learned from reading a book or attending a class. She is one of the few people (maybe the only person) I know who is content with her life just as it is. She doesn’t live in the past, and she doesn’t live in the future, Nancy lives every day in the present. And she sure does know how to pick a man.

Nancy is not beautiful by cultural and advertising standards. Her teeth aren’t perfectly white and close together. She’s a mouth breather. Her fingers take a funny turn and point upward even when her hand is resting palm-side down on the table. She has an unsteady, uneven gait, sort of shuffling her feet while her body sways side to side from the shoulders. But know this: if you overlook Nancy, if you ignore her or dismiss her or disregard her, Nancy’s not the one missing out. You are.

NancyJeanneShopping

things inquiring minds want to know, day 12

sunsetfromseat3f.jpg

as mother remains at the beach with her friends, hubby and i flew to orlando today to visit my sister-in-law (or, as i prefer to say, my sister-in-love), nancy, and take her out to lunch and most importantly: SHOPPING!

this time with mother is so precious. i want to know her at a deeper level. i want to know myself at a deeper level. there are so many questions i want to ask . . . if only i could articulate them.

today was filled with nancy’s repetitive questions:

do you like me?
am i a good girl?
i’m pretty good all by myself, right?

as i answered her questions for the umpteenth time, i realized that nancy’s questions are the best, most important questions of all: simple questions about things we long to know but are too afraid to ask.

NancyJeanneShopping.jpg

nancy, an unlikely shero

nancy.jpg

she’s 50+ in calendar years, yet she goes through life with the perennial wonder of a young child. she’s my sister-in-law, nancy, who is – what’s the label-du-jour – developmentally delayed? i don’t know the label currently in vogue. i simply see nancy as nancy, one who travels this life in her own unique way. she’s different. not lesser than, just different. she’ll never stand before a group of people and assume the role of teacher, and yet there is so much we can learn from her.

what she lacks in, say, self-care abilities (the only way to get her to shower is to shower yourself with her, for example, and to get her to brush her teeth requires repeatedly reminding her to go up and down with the brush instead of just chewing on it), she makes up for in so many other ways. she doesn’t miss a thing, this one, not a single thing. and she goes through the world with a level of attention and a groundedness in the present that others spend much time and money and struggle to achieve.

her highest compliment is to call someone a “good girl” or “good boy”, and if she feels that way about you, she’s not afraid to risk rejection by telling you to your face. if she tells you that something is “pretty good”, you can be sure that to nancy, it just doesn’t get any better because let’s face it: there’s always room for improvement.

immediately after saying something important, she looks you straight in the eye and commands you to “say it”, and if you don’t repeat it back promptly and correctly, she holds her ground and repeats her statement and her demand as many times as needed until she’s satisfied that she was heard.

not much of one for public displays of affection, she gives a hug by leaning the upper half of her body in your direction. want a 2-armed hug? you gotta’ ask for it.

or earn it.

her glasses are perpetually grimy, due in no small part to the fact that she pushes her glasses up on her nose by placing her fingers directly on both sides of the lens. and always right after you’ve cleaned them.

she’s had a crush on “mr. jim” for years now because he meets her criteria: he’s a good dancer and he “doesn’t bite or hit nobody”. she’s made her short list of important traits she’s looking for in a mate, and she stands by them without compromise.

she has an affinity for watches, and she lives by the credo that a girl simply cannot have too much jewelry. she takes care of a bed full of dolls, and she’s quite particular about who can lay a hand on them.

though she has no prestigious career or children as a reason to keep a journal, she nevertheless chronicles her days. once, when i was helping her straighten out the drawers in her nightstand and make room for new things, i flipped through her tablets to see which ones were used and could be tossed to make room for the new, blank tablets. she didn’t want me to get rid of any of the tablets she’d written in, so i paid closer attention as i flipped through them, and that’s when i noticed that she has her very own system for keeping a record of each day. she notes the day of the week, what she had for breakfast (that’s how she knows what day of the week it is). she logs in who’s having a birthday that day, the weather conditions, who she loves, and a few other things before signing out by signing her name.

nancysjournals.jpg

nancy’s a simple woman with simple needs, and she doesn’t waste time wanting something she doesn’t have. though she’s not without the occasional bad mood, on the whole nancy enjoys every day for what it is without bemoaning what it isn’t. wherever she is, whatever she has is enough.

when the two of us jaunt out into the world, i see the change she enkindles in others: they become more patient, more attentive. they smile more and aren’t afraid to make eye contact and attempt conversation with nancy. they seem to relax, and i harbor the notion that they will go away from the encounter being changed in some small way, changed for the better.

there are, of course, others who are obviously uncomfortable around nancy – perhaps because they don’t know how to relate to her or engage with her. i expect she touches something deep inside them – something they don’t even realize is there. my hope is that nancy holds a mirror for them, and that they amend what they see there until they can own it.

i think it’s obvious why i fell smackdab in love with this poem by Alden Nowlan when i first read it, and why i am sharing it with you now. before you start, though, a suggestion: read it through twice. first, read it just as it’s written – and read it aloud, if possible. then go back and reread it (aloud, again), and this time, every time you encounter the word “retarded”, change the “t” to a “g” . . .

HE SITS DOWN ON THE FLOOR OF A SCHOOL FOR THE RETARDED

I sit down on the floor of a school for the retarded,
a writer of magazine articles accompanying a band
that was met at the door by a child in a man’s body
who asked them, “Are you the surprise they promised us?”

It’s Ryan’s Fancy, Dermot on guitar,
Fergus on banjo, Denis on penny-whistle.
In the eyes of this audience, they’re everybody
who has ever appeared on TV. I’ve been telling lies
to a boy who cried because his favorite detective
hadn’t come with us; I said he had sent his love
and, no, I didn’t think he’d mind if I signed his name
to a scrap of paper: when the boy took it, he said,
“Nobody will ever get this away from me,”
in the voice, more hopeless than defiant,
of one accustomed to finding that his hiding places
have been discovered, used to having objects snatched
out of his hands. Weeks from now I’ll send him
another autograph, this one genuine
in the sense of having been signed by somebody
on the same payroll as the star.
Then I’ll feel less ashamed. Now everyone is singing,
“Old McDonald had a farm,” and I don’t know what to do
about the young woman (I call her a woman
because she’s twenty-five at least, but think of her
as a little girl, she plays that part so well,
having known no other), about the young woman who
sits down beside me and, as if it were the most natural
thing in the world, rests her head on my shoulder.

It’s nine o’clock in the morning, not an hour for music.
And, at the best of times, I’m uncomfortable
in situations where I’m ignorant
of the accepted etiquette: it’s one thing
to jump a fence, quite another thing to blunder
into one in the dark. I look around me
for a teacher to whom to smile out my distress.
They’re all busy elsewhere, “Hold me,” she whispers, “Hold me.”

I put my arm around her. “Hold me tighter.”
I do, and she snuggles closer. I half expect
someone in authority to grab her
or me; I can imagine this being remembered
forever as the time the sex-crazed writer
publicly fondled the poor retarded girl.
“Hold me,” she says again. What does it matter
what anybody thinks? I put my other arm around her and
rest my chin in her hair, thinking of children,
real children, and of how they say it, “Hold me”
and of a patient in a geriatric ward
I once heard crying out to his mother, dead
for half a century, “I’m frightened! Hold me!”
and of a boy-soldier screaming it on the beach
at Dieppe, of Nelson in Hardy’s arms,
of Frieda gripping Lawrence’s ankle
until he sailed off in his Ship of Death.

It’s what we all want, in the end,
to be held, merely to be held,
to be kissed (not necessarily with the lips
for every touching is a kind of kiss).

Yes, it’s what we all want, in the end,
not to be worshipped, not to be admired,
not to be famous, not to be feared,
not even to be loved, but simply to be held.

She hugs me now, this retarded woman, and I hug her.
We are brother and sister, father and daughter,
Mother and son, husband and wife.
We are lovers. We are two human beings
huddled together for a little while by the fire
in the Ice Age, two hundred thousand years ago.

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